Monica Evason

Monica Kleijn Evason

“The Brain Project” founder, Corporate Communications Coach, Patient Advocate, Mum

“Curing happens to us healing, happens by us when we participate actively in our health —physically, mentally and emotionally.”

I’m Monica. Corporate Coach and Trainer but first and foremost I’m a mum. Losing a child has to be the most painful loss in life, nearly losing a child comes a close second. We’re not so good at being brave enough to have the conversations that matter yet bottling them up has a mental and emotional impact on both parent and child. With survivorship thankfully improving in paediatric brain tumours, it’s time we also focus on quality of life after cure.

Story sharing helps activate social connection, a crucial part of healing post survival. It’s an antidote to social isolation. At “The Brain Project” we are on a mission to spread the practice amongst patient advocacy groups.

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Other speakers in 2022

Sandrine Lavalle

Luxembourg

Sandrine Lavallé

Engagement and Communication Officer
Luxembourg Institute of Health (LIH)
Gunnar Schroefel

Germany

Gunnar Schroefel

Global Director Patient Advocacy / Global Medical Affairs Oncology
Daiichi Sankyo
Thomas Bols

Switzerland

Thomas Bols

Head of Government Affairs and Patient Advocacy, EMEA & APAC at PTC Therapeutics, Inc.
Member of the Board of EuropaBio
Mireille Muller

Switzerland

Mireille Muller

Executive Regulatory Policy Director, Novartis
Part of several EFPIA groups / Part of the EuropaBio group on ATMPs and Policy
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