Sarita Edwards

Sarita Edwards

CEO & President

E.WE Foundation

Sarita Edwards is CEO & President at the E.WE Foundation, a 501(c)(3) healthcare advocacy organization. She began her efforts of advocacy and public policy after her 5th child was diagnosed in utero with rare disease Edwards Syndrome or Trisomy 18. Sarita is recognized as a world’s top patient expert and social health ambassador. She is an award winning advocate and host of the Being Rare Podcast, an online resource hub and community conversations platform popular for its 60 second episodes.

Sarita serves on executive boards and advisory councils within her home state and across the country. She is a rare disease legislative advocate, a member of multiple coalitions, and an active participant in DEI workgroups promoting health & racial equity, disability rights, and genetic advancements. Sarita also serves as a Community Congress member providing advice and insight on urgent policy initiatives.

Sarita has a Bachelor of Science in Health Science with professional experience in Healthcare Administration & Patient Access. Sarita has certifications in Seizure Recognition & First Aid from the Epilepsy Foundation and Mental Health First Aid from the National Council for Behavioral Health & Mental Wellbeing. Additionally, Sarita has continuing education studies in effective parenting, childhood behavior, and childhood abuse & neglect.

Sarita lives in North Alabama with her husband and their five children.


Other speakers in this event

Maria Pournari


Maria Pournari

Managing Coordinator of Health Hub
Institute of Entrepreneurship Development (iED)
Bogi Eliassen


Bogi Eliasen

Director of Health at the Copenhagen Institute for Future Studies
Chair of the Danish UNESCO Bioethical Committee
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