Ella Balasa is a patient advocate, consultant, and a person living with cystic fibrosis. Having a biology background, she is an advocate for the development of novel therapies for the treatment of antibiotic-resistant infections including phage therapy, as well as speaking publicly at conferences, meetings, and to companies about the value of patient voice in research. She serves as a member of research committees with various organizations and is a director for the US Adult CF Association. She also has a passion for writing about her health experiences, distilling clinical information for patient communities, as well as introspectively writing about the hardships yet triumph that comes with living with a chronic illness. She has been published on MedPage Today, HuffPost, and Pulmonary Therapy Journal to name a few. Through opportunities working with healthcare organizations and sharing her journey through writing and speaking, she aims to affect the healthcare landscape to promote self-advocacy to patients and valuable insights to organizations.
Ella Balasa
Patient Advocate
Advocacy and Engagement Consultant
Other speakers in 2020
Stanimir Hasardzhiev, Dr.
Secretary General - Patient Access Partnership (PACT) / Secretary General - CEE4HEALTH / Genereal Director - National Patient Organisation (NPO) / Chairperson - Bulgarian Association for Personalized Medicine (BAPEMED)